Evie's Special Bow

Raising funds for research into glioblastoma

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Evie was diagnosed with glioblastoma at just 18 months old. The cancer was too aggressive to fight, and Evie sadly passed away in 2019. Her family are raising funds for research into glioblastoma, in the hopes that no other families will have to suffer the same way. Here they tell her story...

Evie was born with a rare liver disease and needed a lifesaving liver transplant at just 9 months old. Tragically, Evie’s donor had died of the brain tumour called glioblastoma, which typically doesn’t spread outside of the brain.

Unfortunately, there was nothing typical about Evie and at 18 months old she was diagnosed with glioblastoma of the liver with metastases to the rib, kidneys and abdomen. She had eleven rounds of chemotherapy before having a second liver transplant to try and remove the cancer from her body. Unfortunately, in the meantime, the cancer had made its way to Evie’s brain and was so aggressive that there were no options for her and so she came home in May 2019 on palliative care. Evie died at home on 17th June 2019.

Evie was the happiest little girl who adored her big brother, Eli, and twin sister, Katie. She loved to watch The Wiggles and her favourite Wiggle was Emma, which gave her the love for yellow and bows. There is not a day that goes by where she is not missed. 

We want to try and help so that hopefully, some day, nobody else will have to suffer the dreadful disease, glioblastoma.

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Text CCLG 5 EVIE to 70300 to donate £5. 

CCLG will receive 100% of your donation. You may also be charged for one text message at your network’s standard or charity rate.

You can make a donation or pay in funds raised by cheque, payable to CCLG, to CCLG, Century House, 24 De Montfort Street, Leicester LE1 7GB. Please ensure you make it clear that the donation is for Evie's Special Bow so that your donation is allocated to the correct fund. 

100% of funds raised support research into glioblastoma.