After two years of successful surgery, radiotherapy and chemotherapy, Ben's scans showed no evidence of cancer. After his experience, Ben and his family wanted to raise funds for CCLG to support research into rare renal tumours. Here, Ben’s family share his story...
Our beautiful son Ben was diagnosed with metastatic clear cell sarcoma of the kidney (CCSK) in December 2014.
Treatment was intensive, involving surgery, radiotherapy and chemotherapy for over a year. In Febuary 2016 Bens scans showed no evidence of disease, and he is now monitored closely.
Ben wants to help other children affected by rare renal tumours.
As a family and with the support of our friends we want to help fund research into kinder treatments, and ultimately a cure for all childhood cancers. We have decided to focus specifically on rare renal tumours of childhood. At present research and information into these tumours is limited, we want to be part of something that changes this. We would also love to be able to provide support for families affected by these cancers.
Our B.O.Y.'s Fund has been set up because of each child affected by rare renal tumours. All of our family call Ben 'the boy' in some form or another - "our beautiful boy", "my boy", etc - and B.O.Y. also stands for 'because of you' - because of Ben and all of the other children we want to help.
Make a donation to Our B.O.Y.'s Fund
Open an online fundraising page for Our B.O.Y.'s Fund
Set up a regular Direct Debit donation to Our B.O.Y.'s Fund
Text CCLG 5 OUR BOY to 70300 to donate £5.
CCLG will receive 100% of your donation. You may also be charged for one text message at your network’s standard or charity rate.
You can make a donation or pay in funds raised by cheque, payable to CCLG, to CCLG, Century House, 24 De Montfort Street, Leicester LE1 7GB. Please ensure you make it clear that the donation is for Our B.O.Y.'s Fund so that your donation is allocated to the correct fund.