After a year of normality, Hayley's condition sadly deteriorated and she passed away. After both Hayley and her sister suffered from neuroblastoma, Hayley's family is determined to help find if there is a genetic link for neuroblastoma. They have been tirelessly raising funds for CCLG ever since, for research into neuroblastoma, genetic predisposition to developing neuroblastoma, and secondary myelodysplastic syndrome. Here, her family share her story...
Hayley was diagnosed with neuroblastoma in September 2015.
She went through 2 years of gruelling treatment including chemotherapy, surgery, high dose chemotherapy and stem-cell transplant, radiotherapy and immunotherapy and reached a point where her disease was stable. Life went back to relative normality and we managed to create some wonderful, happy memories for almost a year.
However, early in 2018, Hayley was found to have developed secondary myelodysplastic syndrome due to the neuroblastoma treatment she had been through. Her consultants were looking into the possibility of Hayley having a bone marrow transplant to treat this when sadly it became apparent that the neuroblastoma had returned in Hayley's bone marrow.
Due to Hayley suffering two active malignancies, there were sadly no further options available to her.
Hayley's sister, Jessica had also suffered from neuroblastoma (stage 4s) as a baby and while numerous tests were done to determine why both children suffered from neuroblastoma, no definitive link has been found as yet.
The Hayley Bendall Fund with CCLG has been set up to help fund research into the following areas: neuroblastoma; genetic predisposition to developing neuroblastoma; and secondary myelodysplastic syndrome, in the hopes that no other family will have to go through the heartache we now live with.
Make a donation to The Hayley Bendall Fund
Open an online fundraising page for The Hayley Bendall Fund
Set up a regular Direct Debit donation to The Hayley Bendall Fund
Text CCLG 5 HAYLEY to 70300 to donate £5.
CCLG will receive 100% of your donation. You may also be charged for one text message at your network’s standard or charity rate.
You can make a donation or pay in funds raised by cheque, payable to CCLG, to CCLG, Century House, 24 De Montfort Street, Leicester LE1 7GB. Please ensure you make it clear that the donation is for The Hayley Bendall Fund so that your donation is allocated to the correct fund.