Sky's family have been raising funds for CCLG in his memory, to support research into ependymoma, a childhood brain tumour. Here, Sky’s family share his story...
On Boxing day 2011 a CT scan showed 'a lesion' in our baby's brain. This was after Sky had been unwell for 4 weeks vomiting, head tilting and declining before our eyes. Within a couple of hours we were blue lighted to Great Ormond Street Hospital
Before the new year arrived Sky had two major brain surgeries and a diagnosis of ependymoma, a cancerous brain tumour.
Sky had chemo until July when an MRI showed the tumour was growing again. He had a third surgery in August and we applied to have proton radiotherapy in the States. Whilst waiting to see if we would get funding we started on an oral chemo to try and hold the tumour at bay. We were granted funding on the NHS but a scan in September showed more tumour growth - too much to make the proton therapy a viable option. So we decided to go for yet further surgery followed by immediate radiotherapy here in the UK.
We then had 9 months of clear scans until our world crashed again with another tumour. Sky had his fifth brain surgery and a second round of radiotherapy with many many risks attached. We were given the worst of news after we finished radiotherapy; the tumour they removed had grown back and Sky had a second tumour towards the front of his brain.
From then we grabbed every opportunity for fun days and happy memories. Sky had the best of times.
On March 15th 2015 Sky decided his wings were ready and he left his tired body behind. We are lost without Sky but focus on his strength and bravery to push us forward.
Make a donation to The Sky David Fund
Open an online fundraising page for The Sky David Fund
Set up a regular Direct Debit donation to The Sky David Fund
Fundraising pages
Text CCLGSKY to 70085 to donate £5.
CCLG will receive 100% of your donation. You may also be charged for one text message at your network’s standard or charity rate.
You can make a donation or pay in funds raised by cheque, payable to CCLG, to CCLG, Century House, 24 De Montfort Street, Leicester LE1 7GB. Please ensure you make it clear that the donation is for The Sky David Fund so that your donation is allocated to the correct fund.